As many of you know, I became sick 2 years ago and have since been diagnosed with mitochondrial myopathy.
For me, the disease affects:
*muscles ~ causing muscle weakness and fatigue
*blood sugar problems
*slurred speech*bladder and bowl problems
The list goes on but I am extremely lucky. With all of all these symptoms, none of them are severe and they are intermittent. I appear to function normally except for the occasional legs giving out and other unpredictable issues. A day doesn't go by where I don't think about the progression of the disease. But a day also doesn't go by where I am grateful for the beautiful life I have.
My neurologist recommended I get hooked up with the Muscular Dystrophy Association in San Diego. I did. They have been so wonderful! They have welcomed my family with open arms. Everyone who works there is so kind and caring. The MDA has provided me with a motorized wheel chair and a transport chair to make getting around easier. They offer ways to adapt my life with my new limitations. They have ongoing research for all of the muscle diseases. They have summer camps for kids that are affected. They offer support.
The MDA is hope.
For everything that they do for families affected by muscle diseases, we knew we needed to give back. February 26th we will be walking (I will be rolling) in the annual 5K Muscle Walk in San Diego. We are trying to raise as much money as we can for them.
If you would like to donate to the MDA please click here. You can donate to the team, anyone on the team or myself. Your help is extremely appreciated.