Friday, June 14, 2013

wyatt and brooke

Wyatt has been having stomach pain for a while now and after seeing the GI specialist it was determined that he needed to have an upper endoscopy.  Brooke, my niece has also been having stomach issues and after multiple tests she also needed an upper endoscopy.  The cousins have 2 different GI specialists in 2 different cities.  Brooke was scheduled for hers before Wyatt and then rescheduled for the 12th of June, this time with Wyatt's doctor.  A week later I was scheduling Wyatt's and they gave me the exact same date and time as Brookes.  How perfect is that?!  It made everything so much easier for all of us.  Especially the kids.  (and me)

Wyatt was a little apprehensive but super brave.  We had been promising him no shots because that's what they told us.  The routine is that the kids get gassed and then they put the iv in them.

Well.... because of my problems with anesthesia they needed to take the same precautions with Wyatt.  Which meant: no gas!  He needed to have the drugs pushed through the iv.  Anthony was the lucky one that went into the OR with him.  I was taken to the waiting room across the hall to wait.  The poor kid was poked 3 times before they got it!!  I could hear him screaming for me the entire time.  So I sat in the small waiting room crying for him just as hard.  The screaming stopped (his, not mine) and Anthony joined me in the waiting room.  We sat for a whole 7 minutes before the doctor came in.  Wyatt went to recovery and Brooke went in for her procedure.  It seemed like forever before the nurse came and got me to help wake Wyatt up.  I went into the recovery room and saw him completely out, with bubbles coming out of his mouth. The nurse gave it her all to wake him but he was too sleepy.  Meanwhile, Brooke was wheeled in and she calmly opened her eyes, saw me and smiled.  I left Wyatts side to be with Brooke.  They I started to wonder why Wyatt wasn't waking up yet.  He finally opened an eye and muttered out the words, "they poked me" and then went back to sleep.  The nurse moved him to the post op room and I sat with him still waiting for him to wake up.  When he did open his eyes he was so dizzy so he just kept sleeping it off.  He didn't have the same anesthesia that his cousin had and they flushed Wyatts but he still had a bit of a hard time.

Once he was up, he got his popsicle and started with the repetitive questions.  I should have recorded him.

These two did so great!  I'm pretty sure I had more tears than the two of them combined.

Now we wait for the results and pray for answers.  It's not fair that these cuties have to have so much pain everyday!  I am in awe of their bravery and pray they can feel better.

Monday, June 10, 2013


Hi!  It's been a while hasn't it?  I think instead of trying to play catch up, I will start with the beginning of summer vacation.  Start with the most recent events and see how well I can keep it up.  With the longer days, the warmer nights, the extra giggles I know I will have lots to share.

Let's begin with the last day of school... the day the kids have been waiting (and crying) for since last August.  We celebrated with an impromptu party at the park.

The next morning, the kid and I hopped in the car and drove to Laguna to stay the night with my grandma.  I haven't taken the trip up their alone in a while (because the drive sadly wears me out) but I figured since we were going to spend the night it would be fine.  I made it about 40 minutes and was completely exhausted.  I used to LOVE road trips and now I can't handle 40 minutes??  Whatever.  Soon after we got there, my grandma sent me to bed for a nap.  What a good grandma.

We got up the next morning and headed home with this pretty lady to celebrate her 87th birthday!!!

The cousins all came to help celebrate too!

Which meant I got to hang out with my twin sister...

And my awesome sister-in-law with her freshly painted nails.

AND this guy!! Love him!

These guys didn't want to go home... so they didn't.

So here were are on day, oh I don't know, 4? of summer vacation and our brains are already fried.  We are looking forward to sleeping in, staying up late, lots of play dates, swimming, beach days.  Oh man, just writing that makes me exhausted... but happy!!

A little health update:
I was supposed to have a doctors appointment with the mitochondrial specialist in December (that one didn't happen because lab work was never submitted) so the appointment was made for May.  Unfortunately UCSD had a 2 day strike and needed to cancel appointments.  Mine was one of them.  I'm not sure when it will be rescheduled for but in the meantime I have been in contact with the founder of the lab where my muscle biopsy is.  The geneticist called me a few weeks ago and explained a bit about what mutations and variations they are finding in my DNA that are causing the disease.  We are getting Wyatt tested through this lab as well.  It will take about 4 months before we get the results.  I'm not ready to go into too much detail about Wyatt's health but he hasn't been feeling that great for a while.  He will be having an upper endoscopy on Wednesday (as long as his cold is gone) at Children's Hospital which I am really eager to get the results for.  I am a bit freaked out about the anesthesia because of my reactions to it but I know he is in a great  place and in really good hands.  So, if you would... could you pray for my little guy?

 Feels good to be back :)  Thanks for the encouragement to start blogging again.  (you know who you are) 

Happy Summertime!!

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