Hi!
I'm so glad that you are here.
I started this blog as a way to share all the love and joy in my life. I have been blessed with an amazing life and am so grateful to see the beauty in every situation. My husband and I walked in the Breast Cancer 3-Day in November 2009 and soon after I became sick. I started experiencing muscle weakness and fatigue. After seeing several different doctors and having many tests ran, I was diagnosed with Mitochondrial Myopathy. My life has changed drastically but being sick has shown me so much light, love and gratitude for life. I see life in more vibrant colors, I hear everything like it is music to my ears and I feel love all around me. I have slowed down. Experiencing JOY and LOVE on a daily basis is what I live for.
Mitochondrial Myopathy is a rare genetic disorder.
Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised. The disease primarily affects children, but adult onset is becoming more and more common.
Diseases of the mitochondria appear to cause the most damage to cells of the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems.Depending on which cells are affected, symptoms may include loss of motor control, muscle weakness and pain, gastro-intestinal disorders and swallowing difficulties, poor growth, cardiac disease, liver disease, diabetes, respiratory complications, seizures, visual/hearing problems, lactic acidosis, developmental delays and susceptibility to infection. source
We {including my doctors} don't know what the future holds but in reality, none of us really do. As of now, the disease is progressing causing severe muscle weakness throughout my entire body. I can't do the things that I used to be able to do but it has given me an opportunity to do other things that I never would have taken the time for {like writing and reading}
I will continue to live a positive and optimistic life because out of everything that we don't have control over, we do have control over choosing happiness. I know that God is in control and with His love, I can get through anything.
